As I’ve mentioned in previous posts I’ve struggled with pain and hip dysplasia since I was about 14/15 with little to no relief from painkillers, it wasn’t until early last year after a fall that I decided enough was enough. I went to my doctors who sent me for an x -ray as they were concerned that I’d do myself more of an injury due to the fall, thankfully I hadn’t done any further damage but they did find that my hip dysplasia had gotten worse as the bone had worn down more over the years.
After my initial x ray I was given an appointment to see a hip specialist which I was very nervous/apprehensive about, from this appointment I was then offered Cortisone steroid injections which you’ll know from previous posts worked absolute wonders for about 4/6 weeks. I was absolutely gutted that the injections hadn’t worked for a longer period and I was now back to square one but I was hopeful that at my next appointment they may be able to offer me something more long lasting.
Today 3rd February was the day of my follow up appointment and all that comes to mind is wow!! firstly I’ll start by explaining that just over 4 months ago when I last saw my specialist, I was told that surgery wouldn’t be an option they were even prepared to discuss for many years too come due to how much would be needed to rebuild my pelvis/hip. As much as I hate being in pain it was a relief to be told that surgery was such a long way off because as with many people I hate hospitals and even the thought of another surgery brings me out in major panic. So if I’m honest today’s appointment wasn’t something I’d been too worried over as I’d sort of convinced myself I’d just be offered some other forms of pain relief.
I couldn’t of been more wrong about the outcome of today, after waiting to be seen I was told by a nurse that my specialist wanted to know did I want a hip replacement, I was just like ‘wow what?’ It was such shock after not expecting surgery to suddenly be told that surgery was now my only option. If being told that having surgery was my only option wasn’t bad enough it then got worse when they proceeded to tell me that unlike most hip replacements due to my disability and the condition that my hip/pelvis is in that it’ll be a much more complex operation than usual, with a seemingly never ending list of possible complications.
Looking back now the whole appointment seems like a blur and I’ve got 101 worries running through my head and about a million more questions than I even got chance to ask during my short time with the specialist. They’ve given me an eight week period to think about it and then get my name on the waiting list but from what I’ve read in the booklets they gave me, I don’t think I’ll be getting the operation due to the high risks of certain things that could go wrong. I feel so frustrated and sad that after all these years it’s boiled down to either risk things being worse or spend my life learning to live with the pain.
Have any of you guys ever had a hip replacement or been offered one? If not how do you manage your pain? Any suggestions or advice would be amazing!
In December you’ll of seen I posted about my experience with hip dyslasia and how after years of hospital appointments and pain, I’d just recently had my first course of Cortisone injections on 18th November 2015. After the procedure I had quite a bit of pain/discomfort which the hospital had warned me about but within about a week the constant pain I’d grown so used to had completely gone. I honestly can’t put into words how good that felt, you’re body gets so used to feeling pain that you completely forget what it’s like to wake up pain free.
Three weeks seemed to fly by and I genuinely felt like I’d be given a brand new leg, I thought I’d finally found something that truly worked and as time passed I was overjoyed to finally be able to get back into a regular routine at the gym, I could see friends again I know it probably sounds crazy that it’d stopped me seeing friends but being in daily pain really had started to take it’s toll on every aspect of my life.
So everything was going great until about a week before Christmas when I first began to notice the clicking again when moving my hip, I didn’t think much of it and just assumed it was because of the increase in cold weather but with the more time that passed I noticed the niggling pain start to come back when walking. I was absolutely gutted at the thought of being back in pain as the last few weeks had been so nice and I finally felt like I had some control over my daily activities again.
We’re almost at the end of January and sadly my pain with my left hip has well and truly reared it’s ugly head again, it’s horrible to back to square one again after a lovely few pain free weeks but thankfully I will be seeing my specialist again in February and I’ve got everything crossed that he’ll be able to offer me something that’s more long lasting.
Have any of you guys ever tried Cortisone and did they work for you? If not how did you deal with the pain?
If you guys have read the blog from the start then you probably will of read my post on hip dysplasia – to surgery or not to surgery, in this post I explained that I’d suffered from hip pain since I was about 15 and that when I was younger they had once offered me hip replacement surgery but this was something I’d turned down at the time because as a scared 15 year old I felt this was a huge decision to make and I didn’t feel I knew enough about it. After I’d turned down the surgery they didn’t offer me anything else and I was left for years to just deal with it and try to manage my pain.
So I sort of give up on doctors but anyone who knows me will tell you that over the years I’ve googled hip dysplasia more times than I can count and tried every possible ‘at home’ remedy I could think of from heat packs, ice cubes, herbal remedies and even losing dramatic amounts of weight but nothing worked.
My pain just seemed to be getting worse the older I got and it was effecting my daily life more than ever as I was in constant pain, I decided earlier this year after a fall that enough was enough and I needed to get some help for my hip before it got any worse. So in June I went for my first appointment as an adult patient with a hip and knee surgeon, I’d waited almost 5 months for this appointment so I was actually really excited/nervous to see what help or options he would be able to offer me. I didn’t hold out much hope though as in the past I haven’t had very much luck in regards to doctors/specialists but to my surprise my specialist had said that surgery wasn’t something they would be willing do right now as it wouldn’t be just a hip replacement, they would have to rebuild my pelvis and then do a hip replacement apparently this is a really big operation which means the longer I can manage without it the better.
After many xrays/scans and examinations they found that as well as my hip dysplasia I now have secondary arthritis which they think is the main cause of my hip pain, although they didn’t think surgery was my best option right now they did come up with another option of giving me cortisone injections. Cortisone injections were something that I’d heard nothing about until ironically I met a lovely lady while sitting in the waiting room, it was one of them you know where you’re sitting there and a wonderful stranger starts telling you there story? I’d been sitting waiting to be called when this lady just randomly started telling me that she comes to the clinic every 6 – 12 months for Cortisone for arthritis in her hands. She told me she’d had them a few times and found them amazing so as you can imagine when they offered them to me I was over the moon, that was until I remembered how she’d described her clinic visits as ‘the scariest of my life’ she then went on to say that the needle was huge and some of the worst pain she’d ever felt.
Despite the stories of terrible pain the lovely lady told me I decided the benefits seemed to outweigh the negatives so I decided to give the injections a go. On 18th November the day finally came for my first course of Cortisone and I can definitely say I’ve never felt more excited to go to an appointment even though I was really nervous as I’m really not too good with needles but thankfully my nerves were soon put to rest once the hospital staff ran through everything that would happen and assured me the needle wasn’t huge! As the doctors assured me the needle wasn’t huge and it wasn’t the worst pain I’ve ever felt like certain people had told me it would be obviously it was uncomfortable like you can imagine with any needle but it was over within 25 minutes, they told me that once home I’d probably be in pain for a couple of days as the steroid in the injections can cause slight irritation at first but after that I’d be fine to get back to normal.
Cortisone injections don’t work for everyone so for a couple of weeks after I was really apprehensive and nervous as to weather they would work for me but just over a month after my injections I’m so pleased to be able to say it has worked wonders for me and my pain has dramatically decreased, the effects of cortisone can last for up to 7 months so hopefully they’ll last that long for me and I’ll be pain free for many more months to come!
Have any of you guys had Cortisone? If so How did it work for you? please let me know in the comments below guys.